I cried for you today.....
unable to tell me what was wrong
stomping your feet
screaming as loud as you can
Yet....
you are left with no words....only PAIN
I see the frustration and anger in your eyes
and then.....
I cried for me.....
spending 5 years as a detective
holding on to every sound you make
believing one day you will speak to me
The neverending frustration of figuring out
your every want and need
I feel so helpless
and then.....
I cried for your brother....
who desperately wants to play with you
who tries to be such a great brother
who is so proud of all your accomplishments
He tells me he hopes your first word is OIL CHANGE
I begin to laugh
and then.....
I cried for your dad.....
who had so many hopes and dreams of you playing sports
family vacations, dating, and getting married..
and then.....
I cried for our whole family.....
who has been to hell and back with
doctors, seizures, supplements, sleepless nights, and allergies
But then I stop crying.....
I start believing and hoping and fighting.....
I start remembering.....
The first time David said Mom
when he waved for the first time
when he slept through the night for 3 nights in a row
when I hugged him and he hugged me back
the list goes on and it will continue to grow....
I realized...it's OK to break down and cry
as long as you get back up
and keep on believing
and keep on laughing
and keep on appreciating the small things.....
Friday, April 19, 2013
Friday, April 5, 2013
ALONE
Things were progressively getting worse with David and I was concerned because my husband and I were not seeing eye to eye on the whole Autism matter. He kept telling me I was overreacting.....now I understand he was hoping that I was and probably just as scared as I was. This was hard for me because I needed him to be on board so we could get help for our son and so we could be there for each other as an emotional support. We went to David's 2 year checkup and I was praying the doctor would mention Autism, so I didn't feel like I was making this all up in my own head. Unfortunately, nothing was said and I was just astounded...how am I the only one who sees that something is wrong? I mentioned it to a few close friends and everyone said they thought David was fine. I'm sure they didn't know what to say, but it just made me feel very ALONE. I remember sneaking into the basement to research Autism, watch Autism videos, and take Autism tests to see if David had Autism. I even went to the library and got books and would hide them in the house, so my husband wouldn't find them. By the way, I became pregnant with our second child right at the beginning of David's regression, so my emotions were heightened to begin with. So, back to David's 2 year checkup. I'm very disappointed and confused and then the phone rings. It's our pediatrician. She said she was reviewing David's chart and the information we filled out and she is concerned. She thinks we should have David tested for Autism. You would think in that moment I would be relieved, someone finally saw what I saw, but instead I broke down crying. That is the first time I heard someone else say Autism and David's name in the same sentence. It was the most horrible feeling. I felt like I just lost a battle. I felt like I lost my son.
Next, was the beginning of many evaluations over the course of the next few years. The first one was probably the most intense and hardest for me. I'll save that story for next time........
Next, was the beginning of many evaluations over the course of the next few years. The first one was probably the most intense and hardest for me. I'll save that story for next time........
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